From a careers perspective

Hi all, led in bed again after i passed out again POTS again it seems to be getting worse, my pulse went up from 64 to 186 in a second and down I went as you know already suffering with my back, now it’s my pelvis and hip on my left side, it is very painful, Emma has just put some magic spray on it, which helps a bit. Anyway thought I would write a blog on what it must be like for a career, I was thinking about it a lot last night, it has a huge impact on…

WHY MENTAL HEALTH IS JUST AS IMPORTANT

I have two kinds of FND, one being particularly difficult to control, I also have 6 pretty serious conditions, two of which run side by side with one of my FND diagnoses, I have no warning when it’s coming and it can happen at any time. I have had a very difficult childhood and through to my teen years, Into adult hood, I have received three different kinds of mental health therapy, ranging from group, one to one and art therapy, for all together five years, in that time I also had a mental health breakdown where I was admitted…

Maria S

Hi, if you are Maria S and you sent us a message, I sent a big long reply to the email address you gave but it says it is not valid. Could you contact us again if you don’t mind, our direct email address is fnd.friends@yahoo.com and/or our Facebook page which is simply fnd friends. Thank you, Emma

New blog for a new domain…

For a number of reasons, we are having to transfer all of our information from this domain name (www.bristolfnd.org) to our new domain (www.fndfriends.org). From now on, all new blog posts, and any other information that is put on our website, will be using this new domain name. There will be a period of overlap, and so don’t worry if you are unable to find the new website to start off.  The new blog address is https://fndfriends.org/blog/.  If you have any problems, please do not hesitate to contact us using the ways listed here.    

Let’s just wait and see.

When I was first diagnosed with FND, both my feet faced the right direction. At the time, this didn’t seem like a particularly remarkable fact, just as it wouldn’t seem worthy of a mention for most people. As the disorder progressed for me though, my right foot had a life of its own, and started to face inwards, a situation diagnosed as functional dystonia. To start with this was not too problematic as, with concentration, I could straighten my foot so that I could wear shoes. However, as time passed it became harder to rectify until finally the dystonia became…

Carers in Bristol and South Gloucestershire

Without my carer, I would be stuck. I think I’m right in saying that for an awful lot of people with FND. My carer, my husband, has taken on all the domestic tasks, a lot of the child care, as well as providing for us all by working full time, and ensuring that there is a meal on the table at the end of the day. I say thank you to him for all his hard work, but I’m not sure that this is enough sometimes, although I cannot think what else I can do. One option is to find…

Have your say

We have become aware of an opportunity for Bristol residents to have a say in healthcare. Healthwatch Bristol are inviting people to tell them their stories about how, where, when, who was involved in their healthcare, and what they would like to change. Stories are then passed onto service providers & funders, with the aim that services can be changed for the better. There are many ways in which stories can be shared: http://www.healthwatchbristol.co.uk info@healthwatchbristol.co.uk 0117 2690400 Twitter @HWBristol Facebook bristolhealthwatch Post Freepost RSBS-YBHY-RYLL Healthwatch Bristol The Care Forum The Vassall Centre Gill Avenue, Bristol BS16 2QQ